Sunday, August 15, 2010
sunday....
Goodmorning, we are hoping to get Lane off the vent today. Just a few minutes ago when Lane was throughing a fit I actually heard the tiniest little squeak. There is hope for us hearing him cry! He is adjusting well to the trach and vent. The nurse told me today that she will let me hold him even though I'm really not suppose to!!! I'm really excited. I have only held him twice in one week. Prayers are working and although I was very much against a trach...Lane is feeling so much better. Thank the good Lord for the hand he has had on my precious little boy. Thank you all for your prayers.
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Hi Danielle,
ReplyDeleteWe met in the NICU. My son Jeremiah also has SB. I've been reading your blog every once in a while to see how Lane is doing, and I am sad to hear that the stridor didn't get better. I will be praying for your family as you adjust to the trach and going back to school.
We will be at Riley on Tuesday for clinic. Please let me know if you are still there and need anything. I'd be happy to bring you something- even if it is just a cup of good coffee!
Your family is in our prayers!
Sincerely,
Hannah McAdams
hannahmariemcadams@sbcglobal.net
www.caringbridge.org/visit/jeremiahmcadams
Thank you, we will most definately be here for at least one more week. I really appreciate your concern and prayers. I would be glad to talk to you....Danielle
ReplyDeletehey it me the home doc again.
ReplyDeleteOnce more mary and I want to tell u both how proud we are of u guys,and want to thank u for are little
prince. You to are the strongest people I know,and need to no we will do everything posible and some that are not to make it easier on you 3.
I am up here waiting 4 class,never thought i would say that again in my life,mary and I will be here for whatever you 3 need and we will master the trach
if it takes 100 classes.
I would give any and everything to take all 3 of yours pain and worry for even one day.
Please feel at ease noing we will be here no matter
where for you all, and by the way stop tring to give
sitting job away.
sorry i cant write as well as some
love pops
Dear Danielle,
ReplyDeleteSomeone that met you at Riley sent your blog to me and I have read most of it. I just wanted to say hello. Our third child, Toby, has Spina Bifida (he's now 3 1/2) - a trach, g-tube, and a ventilator. We went through a very similar situation as you when Toby was a baby - lots of time in the hospital, then the decision to do the trach. He had stridor, vocal cord paralysis, aspiration, etc...Toby's come a long way and your little one will too. We also have 16 hours a day of nursing care in our home. Please feel free to e-mail me anytime if you have questions, I understand because I've been there. Here is Toby's caringbridge:
www.caringbridge.org/visit/tobyholt
You can do it! Hang in there - prayers coming your way.
Sincerely,
Carrie Holt
h6carr@aol.com
its mom!!! just wanted to let you know we all love you and that baby lane is our special angel. He is such a blessing. stay strong and know that we love all of you and that our thoughts and prayers are with you and know that all of your family is here to support all of you in anyway that we can. May God continue to bless you kids and give you strength. He truly has his hand on Lane because he so beautiful and such a little fighter. love you all mom deckard
ReplyDelete