Well we are still here at riley. Lane is still on the vent this morning. We are really hoping that he can come off today and get off sedation. They did an mri last night to look at his brain structure but we have not heard the results. Lane's neurosurgeon does not think it has anything to do with his chiari malformation. I'm not sure I posted about that technically so he is a little bit of info on it...
Arnold Chiari II malformation is a malformation of the brain commonly seen in persons diagnosed with spina bifida. The brain is severly compressed from the spina bifida and is pulled back and down into the vertebrae. This creates a cork of sorts for the brain which leads to hydrocephalus, water on the brain, requiring a shunt. Pressure on the brain stem can cause many neurological problems includng feeding dysfunction, breathing problems, developmental delays, etc.
If the problem is a nuerological problem we are being told lane will most likely have to have a trach...an artificial airway. They do have a surgery for the chiari malformation but it is very high risk. They basically remove part of the top vertebrae of the spine and sometime basically move the brain. I'm so praying for a non neurological answer because neither of these options are roads i want to cross. We should be finding out more info today so i will update as soon as possible. Thanks to you all for the prayers we have been recieving.
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