Tuesday, April 27, 2010
grrr.......
well its not looking good for us arriving home today. lane didnt quite pass his sleep study so now we have a whole slew of new doctors coming in to check his lungs and stuff out. so we are still hoping for today but reluctantly planning on tomorrow. i was pretty upset, but it is best to make sure he is ok before we go i suppose. the good news of the day WE DON'T HAVE TO CATH ANYMORE. Little Lane has started peeing in his diaper. This is really good news. So hopefully we will just be taking home the ng feeding tube and discontinuing it soon too. We may have to go home on oxygen. We are praying that is not the case, but time will tell and hopefully we know that this afternoon. The nurse just told us lane has to have a test where they put a scope down his throut to look at his lungs and make sure they look good. Poor little guy, I'm so ready to get him home where he won't have to deal with all this crap. Well hope to see you all back home soon....
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so sorry our little one is going thur so much but it is better to know all this stuff now so glad no more cath you just bear with them and don't get to stressed we will be here when he gets home he is doing so good and he is so strong he will be kicking butt and taking names soon you r in my prays love you all and be careful comming home g g m d
ReplyDeleteHi Danielle,
ReplyDeleteHope you get your little guy home soon. What town do you live in? I will say a prayer!
For the most part it seems he is progressing well. His back is healing, the shunt went in, right? and he is pottying on his own!
Thank you so much for posting your journey.
I will be there in a month going through it too. My little girl will probably have the genetic testing too. She will be hopefully 4-5 pounds too because she is a twin. They feared Trisomy 13 or 18 but we didn't do an amnio.
How many hours do you get to visit in a day? How was the shunt surgery? Have they told you where Lane's SB defect was? It's okay if you are to busy to get back to me. I will continue to follow your blog, take care. You and your husband are such a team!
Jill
jatay71@hotmail.com