a couple of pictures

Just realized I have not added any pics lately so here are a few more...


Easter..


A sucker in the car...not mommys best idea!

Mothers Day with an update!

Update- Lane is doing so well. We finally made it home from the hospital and got over the pneumonia. Sorry it took so long to update you. I have been finishing up this year of nursing school and am glad to say that I am done for the summer. Hopefully I can get some more blogging done now! Lane started pulling up a few weeks ago. He has a little table that he pulls up and stands there to play with. It is such a miracle watching him stand. He has been playing catch up developmentally lately. In the last few weeks he has learned to wave, clap, play peek a boo, and laugh when you tell him no. He is just blossoming everyday as he learns new things. Well this is short as my brain is working to fast to keep up. Hope it made since. I will get to a better update soon!

Mothers Day- This mothers day is extra special to me. At one time in the darkest of days after lane's birth, Drs were telling me I would spend this Mothers Day childless. It amazes me that they were so very wrong, even though they were convinced they were so right. As it is I have had a wonderful day with a beautiful baby boy that happens to be the best gift ever!

I would also like to say that I have had many people message me about how great a mother I am! Thank you but I truly an just an ordinary mother. I may have a busier day than some and do stuff most people would have nightmares about but us special needs mothers are just like all moms. We get tired, we have breakdowns, we need breaks, we have moments where everyone drives us crazy! Sometimes on the outside we seem strong, but inside we are crumbling. We love our kids and cherish every moment with them Just like all of you!

So I ask you all one thing, enjoy your kids and be thankful for them not only today but each and every day! Happy Mother's Day to you all.

Here is a pic of Lane standing. I am just holding his ankles to keep them from rolling since he doesn't have braces yet!

pneumonia

Hello everyone,
Not the update I wanted to give you all but we are back in the hospital. Lane started having a lot of secretions a couple days ago that led to a fever and a cough. We decided to bring him to er last night and he has pneumonia so here we are admitted to the hospital for a few days. The nurse came in and said that he has some bacteria in his blood so we are waiting to see what comes of that. Please keep Lane in your prayers for a quick recovery!

1 year old...

Lane turned one yesterday. It is so hard for me to believe a whole year has passed. This year has been filled with extreme hardships and sorrow but also with joy, success, tons of love, happy tears, and the great enjoyment of our precious little boy. Looking back I never could have imagined how amazing Lane would be. We started his life with hard news. Drs saying he would not live past six months, had severe brain damage, and other abnormalities was hard to swallow those first few days. Turns out we didn't need to "swallow" any of it. I wish those drs could have seen him yesterday. Laughing, opening his presents, and eating his yummy cup cake. Life is amazing with Lane it. God granted Roger and I with a gift far beyond our imagination. He gave us Lane knowing how special he would be. Last night I rocked my baby boy to sleep. A year ago I longed to hold him and thinking of how much a miracle he is brought tears to my eyes. Lord I'm sending up a special thanks to You for choosing me and Roger to be Lane's parents. Every child is special, but I think we got an extra special one. ;) Now for some pictures of course. Lane's party is this weekend so I will give some pictures then too! I can't believe my baby is 1!!!!!
P.S. Thank you all for your support of our family for a year!

First Born   



In NICU


First time being held...

First Outfit...

Trach..

Halloween...

christmas morning

sitting!

Big Boy 

bath time

birthday cupcake

                         

Mommy and Lane..

It's been an amazing year and I am certain the rest of our lives will be just as amazing! We love you baby boy, thanks for being so awesome!
                        

quick update

This is going to be a real quick update with some BIG BIG news!
A. I passed med surg...yay me. One step closer to graduating nursing school!
B. Lane is doing great. He is sitting up really well and cooing around his trach like a mad man!

and drumroll please......
C. DECANNULATION- thats right. May 10th if all goes well Mr. Lane is going to be trach free for good!!! We have a bronch on april 15 to check the vocal cords and if that goes well we are all clear for the 10th! Can we say PARTY for Mr. Lane

Lane will be turning one very shortly and o my what a first year of life. I will post a proper update on that coming soon!

Also we are walking in april for the march of dimes. Our team is now accepting donations. Go to http://www.marchforbabies.org/ and search for Lane's Warriors if you are interested in helping us out! Thanks for reading and again proper update is on it's way!

Fairy Tales

I remember as a little girl dreaming of being grown up one day. Being a doctor or lawyer and marrying my prince charming in a huge ceremony. We would buy a huge house and have adorable little kids running around. Life would be perfect, just like in the movies. Rich and successful, what everyone wanted! It was a fairy tale I, and every other little girl, kept with me for a long time. My fairy tale didn't include anything short of perfect. Hey, it was my dream.

My fairy tale did not make room for lifes ups and downs. It would be the way I thought in my mind it should be and nothing else was an option.

My fairty tale did not visualize marrying my high school sweetheart before finishing college, having a baby at nineteen (let alone a special needs baby), struggling financially at times, or having any other hardship.

Fairy tales are about:

 Love

Laughter

Kisses

Friends

Family

Being Mad

...and Happy

Struggles...

Success

Chillin' Out

Good rest after a hard

days work..

Simply enjoying life

to it's fullest!

Turns out I got my fairy tale!



home and happy

We are home and Lane is super happy about it. I will post a proper update soon!!!

still here...

We are still at riley. Lane's having a lot of problems breathing now. He is breathing extremley fast..sometimes hitting seventy breaths a minute and has had some issues with desating which is where the oxygen in his body is getting too low. It seems so crazy that now, of all times, he is having breathing problems. He has never had oxygen issues and it would have made more sense when he had the trach put in or when he was born than it does now. I have not gotten an answer yet on what is causing this. Hopefully they can turn this around quick so we can just go home. It is so hard to be here sometimes. It just gets depressing being held hostage in this place.

I also realize I never really followed up with what got us here to begin with. After being discharged on Wednesday last week Lane seemed pretty good. Saturday morning he woke up fussing. I really didn't think much about it. He cried all day Saturday unless he was asleep. I still was not overly concerned because he was not vomiting or unresponsive so I really thought he just had a bug. Well, Sunday came and he was STILL crying. Around ten I had had enough and took him to the ER. I still thought it was just a bug but something needed done. Turns out it was the shunt causing the problems as you know. I really hope they got it fixed this time. Poor guy got stuck literally 20 times trying to get an IV and still didn't get one. The had to do it during surgery poor baby.

So with anyluck we will be home very soon! I have no idea what this breathing stuff is going to put us in but hopefully it's manageable at home!

Again thank you all for your prayers, thoughts, concern, and interest!

Headed home...hopefully?!?!?!?!

Lane is doing well today. They revised the shunt again. The doctor said there was some mild bleeding in the brain which she thinks triggered an immune reaction that clogged the shunt. She went in and cleaned out the ventricles of the brain to check for active bleeding and she found none! So Lane has a brand new shunt and some really clean ventricles!!

Last night he woke up from surgery super happy.
Some quick phone snap shots of the smiles I had not seen in a few days.

O he is so precious. We are hoping to all get home tonight! I had to come take a test for finals so  I am waiting on the call to come back or wait here at home. It really sucks not being there even though it has only been a few hours. Daddy and Grandma Chrissy are there with him though!

The only thing holding them there is since the surgery lane has started making a whistling noise. It sounds kind of like the stridor before the trach but not quite. He just keeps coughing so it is irritating him. Pulmonary is suppose to be looking at him anytime now to see what is going on. They said it was a leak in his airway. Dare I wish that this shunt surgery fixed the vocal cords!!! I am doing my best not to jump the gun on that one.

Well that is all for now here. I will update as soon as I get some more info. Thanks to everyone for their thoughts and prayers! Danielle

gone and back again 2

I really hope this blog title stops at 2. We are back at riley. They sent us home on wednesday and yesterday we came back for unconsolable crying which was of course the shunt. Lane had surgery this morning and is doing well. I will update this later this week if not before. I am crazy stressed as it is finals week at school on top of all this!