Daddy is also on the move to fitness! He is working hard to shred some pounds and get in shape so I have to say how very proud I am of the progress he has made (though he refuses to run a half marathon)!
Now for the one you really want to hear about. Lane is awesome! He has progressed so much so fast lately. He started pulling up about a month or two ago and quickly started crawling on his hands and knees. He is now about 50/50 on army crawling and four point crawling. The biggest news (if you didn't catch it earlier) is Lane is taking steps with his walker!!!! With a little supervision and occasional support he can walk across my living room, which is really big. Without any help he is going about 6ft! This is absolutely amazing and I get so excited EVERY time! My little guy never fails to surprise me. Lane is also into everything, and I mean EVERYTHING. Nothing is safe now and it seems I can't baby proof enough, but I love it! He is starting to sign and talk a little. I am still hopeful this trach will be out before summer so he will be talking soon, but we are starting sign language just in case. He is picking it up fast and seems to like the extra ability to communicate. We also added on occupational therapy to work with his feeding skills as he chokes quite a bit. So far Lane is not too happy about it so progress is really slow. I have faith in our new OT and I am praying that he will be more accepting of her soon! We are headed to spina bifida clinic tomorrow so hopefully since I am on break I can get that update in here! Here are a few pics to hold you over until I get my camera uploaded, hopefully with the tomorrow post?! Merry Christmas!
Standing at the Window
At the toy box WITHOUT braces!
Always Happy!
Latest endeavor....climbing!
more to come....
Hello!
ReplyDeleteI stumbled upon your blog, and reading few of the entries has given me a very meaningful inside perspective about having a child affected by spina bifida. I am inspired by your courage and touched by the pictures of your family that I had to reach out. My name is Courtney Beyer, and I am the new Study Coordinator at VitaPath Genetics. Earlier this year, we successfully completed the first phase of our landmark study looking at the genetic factors contributing to spina bifida. In conjunction with our academic collaborators at Children’s Hospital Oakland Research Institute (CHORI), Stanford, UC Berkeley and UCSF, we recruited over 1,000 women and their child affected by spina bifida to participate.
Our first phase produced promising results but, we believe that it is appropriate for us to replicate this study in a second, independent group of mothers. We are beginning our second study in early January and are reaching out to more mothers to participate. In order to reach as many women as possible, I would very much appreciate if you could include news about the study in your blog. I also have banners and buttons if you would like to post something on your site. In addition it would be great to connect with you via facebook (search SB Genetics) and twitter @sbgenetics.
I would like to get in contact with you to share more information and answer any questions that you may have. Please email me at CBeyer@vpgenetics.com and visit www.sbgenetics.org. This website gives an in depth explanation of the study as well as a link if you are interested in enrolling. Thank you for taking the time to read my note and I am greatly looking forward to being in contact.
Warmest regards and happy new year,
Courtney