Wow, I just realized how long its been since I actually updated and I have left everyone hanging on a few major things! First of all Lane did not decannulate May 10th as planned. When he had his bronch on April 15 they saw that his airway was still pretty floppy and collapsing in on itself. We are hoping to decanulate in October now. If the trach is not out by October we will be waiting till spring unfortunately to try again.
Lane is doing AMAZING! Since starting therapy I can see such a big difference in his strength. He stands up straighter now and does not depend on the table nearly as much as he did. He sits like a champ. He is learning well how to transition from sitting to laying and the other way around. He is starting to pull himself on his belly (aka army crawling)! I think our baby will be on the move VERY soon! He is getting braces in July so hopefully he will be walking by this fall. Our therapist is doing really great at teaching me how to work with him so we are making progress.
Lane loves to be outside now that we have tackled his allergy problems. He is a grass picker lol! He takes after us on his love of the outdoors.
Well this is a short update but that is a good thing in our life! Some recent pics of course too!
He is so adorable and has accomplished so much dispite having issues. He is a strong and indepenent person and will do whatever he wants in this life. To that I have no doubts. Second you are a wonderful mother. You are very young but have the knowledge and patientence of someone so much older. You accepted his issues from the beginning and said so what do I have to do for him to be able to crawl and walk and then you went beyond that and have accomplished alot in such a little amount of time. To that you should be rewarded. I hope you keep this blog for him to read when he is older so he can see the love you had for him from the beginning. I think God picked the perfect person to be Lane Mommy.
ReplyDeleteyou and Roger dale are great parents and with the help of your parents and grandparents .things are really going well. Keep up the good work. love you aunt sue.
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ReplyDeleteMy name is Jenna and I came across your site. Lane is a courageous, strong, and determined fighter. He is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and i love it when someone sign's my guestbook. www.miraclechamp.webs.com